The Washington State Department of Social and Health Services Developmental Disabilities Administration's website is a wealth of information for people with I/DD and their families. You can find the site at https://www.dshs.wa.gov/dda/resource-links or use the links below to take you to different topics of interest.
Advocacy Organizations
- Action DD (www.actiondd.org)
- American With Disabilities Act Technical Assistance (https://www.ada.gov/infoline.htm)
- Community Employment Alliance (www.communityemploymentalliance.org)
- Consortium for Citizens with Disabilities (www.c-c-d.org)
- Disability Rights Washington https://www.disabilityrightswa.org
- Disabled Peoples' International (www.dpi.org)
- Family Voices (familyvoices.org)
- March of Dimes -- Washington Chapter (http://www.marchofdimes.org/local/in-your-area.aspx)
- National Association of State Directors of Developmental Disabilities Services (https://www.nasddds.org/)
- National Organization on Disability (www.nod.org)
- Open Doors for Multicultural Families (https://www.multiculturalfamilies.org/)
- Parent to Parent (https://www.p2pusa.org/)
- Partners in Policy (https://mn.gov/mnddc/pipm/)
- People First of Washington (http://www.peoplefirstofwashington.org/)
- Tacoma Area Coalition of Individuals with Disabilities (https://tacid.org/)
- The National Association for the Dually Diagnosed (http://thenadd.org/)
- Self Advocates Becoming Empowered (www.sabeusa.org)
- TASH (https://tash.org/)
- The Arc of Grays Harbor (arcgh.org)
- The Arc of King County (arcofkingcounty.org)
- The Arc of Kitsap/Jefferson Counties (https://www.penarc.org/)
- The Arc of Snohomish County www.arcsno.org
- The Arc of Southwest Washington (www.arcswwa.org)
- The Arc of Spokane (www.arc-spokane.org)
- The Arc of Washington State (https://arcwa.org/)
- The Arc of Whatcom County (arcwhatcom.org)
- The Council For Disability Rights (http://disabilityrights.org)
- Washington State Developmental Disabilities Council (https://ddc.wa.gov/)
Aging & Developmental Disabilities
- Aging and Long Term Support Administration (DSHS)
- The Conversation Project - tools to help have conversations about end of life care and a person's wishes. (https://theconversationproject.org/starter-kits/)
- National Down Syndrome Society (https://www.ndss.org/)
Alcohol and Substance Abuse
- Developmental Disabilities/Substance Abuse (https://www.mass.gov/orgs/massachusetts-developmental-disabilities-council)
- The Substance Abuse Resources & Disability Issues (SARDI) Program (https://medicine.wright.edu/)
Arts and Disability
- National Arts and Disability Center (https://www2.semel.ucla.edu/nadc)
- National Institute of Art & Disabilities (http://niadart.org/)
- Sprout Film Festival (http://gosprout.org/film-festival/)
Assistive Technology
- Washington Assistive Technology Alliance (http://watap.org/)
- Washington Assistive Technology Foundation (https://www.nwaccessfund.org/)
Autism
- ASPEN (aspennj.org)
- Autism Distance Education Network (https://www.albany.edu/autism)
- Autism Guidebook for WA State (https://www.doh.wa.gov/Portals/1/Documents/8340/970-NonDOH-AutismGd-en-L.pdf)
- Autism National Committee (www.autcom.org)
- Autism Research Foundation (www.ladders.org)
- Autism Research Institute (autism.com)
- Autism Society of America (www.autism-society.org)
- Autism Society of Washington (http://autismsocietyofwa.org/v2/)
- Autism Speaks (https://www.autismspeaks.org/)
- Autism Spectrum Disorder and Sleep (https://www.tuck.com/autism-spectrum-disorder-and-sleep/)
- Autism Now (National Autism Resource & Information Center) https://autismnow.org/
- Families of Adults Afflicted with Asperger's Syndrome (FAAAS) (www.faaas.org)
- FEAT (Families for Early Autism Treatment) (feat.org)
- Geneva Centre for Autism (www.autism.net)
- KidsHealth for Parents: Asperger's Syndrome (https://kidshealth.org/en/parents/?search=y&q=asperger&datasource=kidshealth§ion=parents_teens_kids&lang=english&start=0&rows=10)
- TEACCH (Treatment and Education of Autistic and Related Communication (https://teacch.com/)
- The Mind Institute, UC Davis (https://health.ucdavis.edu/mindinstitute/)
- University of Miami Center for Autism and Related Disabilities (http://www.umcard.org/home/)
- University of Washington Autism Center (https://depts.washington.edu/uwautism/)
- WA State Dept. of Health (https://www.doh.wa.gov/YouandYourFamily/IllnessandDisease/Autism)
Blind/Visually Impaired
- National Information Clearinghouse on Children Who are Deaf-Blind (https://www.nationaldb.org/)
- Washington State School for the blind (https://www.wssb.wa.gov/)
- Washington State Dept. of Services for the Blind (www.dsb.wa.gov)
Brain Injury
- Brain Injury Association of Washington (https://www.biawa.org/)
- Brain Injury Association, Inc. (www.biausa.org)
- University of Washington School of Medicine, Dept. of Rehabilitation Medicine (http://rehab.washington.edu/)
Cerebral Palsy
- American Academy for Cerebral Palsy and Developmental Medicine (www.aacpdm.org)
- Cerebral Palsy Guide (https://www.cerebralpalsyguide.com/)
- March of Dimes (http://www.marchofdimes.org/complications/cerebral-palsy.aspx)
- National Institute of Neurological Disorders and Stroke (https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Thr...)
- United Cerebral Palsy (https://ucp.org/)
Children
- Department of Early Learning (https://www.dcyf.wa.gov/)
- Department of Children, Youth, and Families (https://www.dcyf.wa.gov/)
- Informing Families: High School Transition Toolkit (in Spanish) (https://informingfamilies.org/transition-toolkit-espanol/)
- Seattle Children’s Center for Children with Special Needs: Adolescent Transition (https://cshcn.org/adolescent-transition/)
Deaf and Hard of Hearing
- Deaf Linx (http://www.deaflinx.com/)
Dental and Oral Health
- Mom's Guide to Caring for Little Teeth (https://www.1dental.com/moms-guide/)
- Adult Dental Coverage through Washington Apple Health (https://www.hca.wa.gov/health-care-services-supports/apple-health-medicaid-coverage/dental-services#dental-services-for-adults)
- Seattle Children’s Center for Children with Special Needs: Dental Care and Treatment (https://cshcn.org/resources-contacts/dental-care-for-children-with-special-needs/)
Disability Studies
- Canadian Centre on Disability Studies (http://www.disabilitystudies.ca)
- Center on Human Development and Disability (http://depts.washington.edu/chdd//)
- Guide to Disability Rights Laws (https://www.dol.gov/agencies/odep/topics)
- Human Services Research Institute (https://www.hsri.org/)
- Smithsonian National Museum of American History (Disability Rights Movement) (www.americanhistory.si.edu/disabilityrights/welcome.html)
Down Syndrome
- Down Syndrome Educational Trust (https://www.dseinternational.org/en-us/)
- National Down Syndrome Society (www.ndss.org)
- National Association for Down Syndrome (www.nads.org)
- The Canadian Down Syndrome Society (https://cdss.ca/)
Early Intervention
- Child Development Supports, Department of Early Learning (https://www.dcyf.wa.gov/services/child-development-supports/esit)
Employment
- Best Buddies International (www.bestbuddies.org)
- Gladnet (www.gladnet.org)
- JAN (Job Accommodation Network) (https://askjan.org/)
- National Collaborative on Workforce and Disability (http://www.ncwd-youth.info/)
- U.S. Office of Disability Employment Policy (https://www.dol.gov/agencies/odep)
- Office of Employment Support Programs (https://www.ssa.gov/work/)
- Washington Employment Provider Search (https://www.statedata.info/washington/quality-employment-services)
- Washington Initiative for Supported Employment (https://www.gowise.org)
- Your Ticket To Work (https://yourtickettowork.ssa.gov/)
Epilepsy
- British Epilepsy Association (https://www.epilepsy.org.uk/)
- Epilepsy: Questions & Answers (Southern Illinois University) (www.siumed.edu/neuro/clinic/epilepsy/QuestionAnswers.html)
- Epilepsy Foundation (http://www.epilepsy.com/)
- National Institute of Neurological Disorders and Stroke (https://www.ninds.nih.gov/Disorders/All-Disorders/Epilepsy-Information-Page)
Family Support
- Beach Center on Disability (https://beachcenter.lsi.ku.edu/)
- Carina (https://info.carinacare.com/faq)
- Family Community Connections Guidebook (PDF) (https://informingfamilies.org/wp-content/uploads/2016/03/Community-Guidebook.pdf)
- Informing Families: Resources (https://informingfamilies.org/topic/resources/)
- Open Doors for Multicultural Families (https://www.multiculturalfamilies.org/)
- Parents Helping Parents (www.php.com)
- Seattle Children’s Center for Children with Special Needs (https://cshcn.org/):
- The Fathers Network (https://fathersnetwork.org/)
Fetal Alcohol Syndrome
- Fetal Alcohol Spectrum Disorders Center for Excellence (https://www.samhsa.gov/fetal-alcohol-spectrum-disorders-fasd-center)
- U. of Washington School of Medicine Fetal Alcohol and Drug Unit (http://depts.washington.edu/fadu/)
Health Portals
- HealthFinder.gov (https://health.gov/myhealthfinder)
- Health.gov (https://health.gov/)
- MayoClinic (https://www.mayoclinic.org/)
- Medline Plus (https://medlineplus.gov/)
- Network of Care (https://www.trilogyir.com/)
Healthcare
- Adolescent Health Transition Project (www.depts.washington.edu/healthtr/)
- Center on Human Development and Disability (http://depts.washington.edu/chdd/)
- Children's Hospital & Regional Medical Center (www.seattlechildrens.org)
- Family Voices (familyvoices.org)
- National Network of Libraries of Medicine (https://nnlm.gov/)
- Washington State Home Care Quality Authority (http://www.hcrr.wa.gov/default.htm)
Independent Living
- Center of Independence (https://www.cfi-wa.org/)
- Community Living Exchange (www.cshp.rutgers.edu/Error.htm?aspxerrorpath=/)
- Housing and Urban Development (https://www.hud.gov/topics/information_for_disabled_persons)
- Independent Living (www.independentliving.org)
- Independent Living Research Utilization at TIRR (www.ilru.org)
Inclusion
- Institute for Community Inclusion (www.communityinclusion.org)
- Institute on Community Integration (https://ici.umn.edu/)
- Inclusion Research Network (www.inclusionresearch.org)
Legal
- Columbia Legal Services (https://columbialegal.org/)
- Council of Parent Attorneys and Advocates (https://www.copaa.org/page/about)
- National Guardianship Association (www.guardianship.org)
- Law, Health Policy & Disability Center (http://disability.law.uiowa.edu)
- Disability Rights Washington (https://www.disabilityrightswa.org/)
- Northwest Immigrant Rights Project (https://www.nwirp.org/)
- Northwest Justice Project (https://nwjustice.org/get-legal-help)
- Wrightslaw (www.wrightslaw.com)
Local Government
Media
- Disability History Museum (https://www.disabilitymuseum.org/dhm/index.html)
- Enabled Online (enabledonline.wordpress.com/)
- Exceptional Parent Magazine (https://www.eparent.com)
Medical/Medication
- Harvard Health Publications (https://www.health.harvard.edu/)
- National Organization for Rare Disorders (https://rarediseases.org/)
- National Institute of Neurological Disorders (https://www.nih.gov/about-nih/what-we-do/nih-almanac/national-institute-...)
Mental Health
Person Centered Planning
- My Life Plan (https://mylifeplan.guide/)
Positive Behavior Support
- Michigan Positive Behavior Support Network (www.bridges4kids.org/PBS/PBS.html)
- University of Delaware Positive Behavior Support Project (http://wh1.oet.udel.edu/pbs/)
Prader-Willi Syndrome
- International Prader-Willi Syndrome Organization (https://www.ipwso.org/)
- Prader-Willi Syndrome Association (www.pwsausa.org)
Quality
- The Council on Quality and Leadership (https://www.c-q-l.org/)
Recreation
- Cerebral Palsy International Sports & Recreation Association (https://cpisra.org/)
- Kids Camps (www.kidscamps.com/special_needs/developmt_disability.html)
- National Center on Physical Activity and Disability (https://www.nchpad.org/)
- Seattle Children’s Center for Children with Special Needs: Summer Camp Directory (https://cshcn.org/resources-contacts/summer-camp-directory/)
Self-Determination
- National Program Office on Self-determination (selfdetermination.ku.edu/)
- Neighbours Inc. (www.neighbours-inc.com)
Special Education
- All Kinds of Minds (www.allkindsofminds.org)
- Council for Exceptional Children (https://exceptionalchildren.org/)
- Office of Special Education Programs (https://www2.ed.gov/about/offices/list/osers/osep/index.html)
- Partners in Education (mn.gov/mnddc/pipm/)
- Wash. State Office of Superintendent of Public Instruction (https://www.k12.wa.us/student-success/special-education)
- PACER Center (Parent Advocacy Coalition for Educational Rights) (www.pacer.org)
- Seattle Children’s Center for Children with Special Needs: Schools, IEP, 504 Plan (https://cshcn.org/childcare-schools-community/)
- Washington PAVE (Parents Are Vital in Education) (https://wapave.org/)
Transportation
- Wash. State Agency Council on Coordinated Transportation (www.wsdot.wa.gov/acct/default.htm)
U.S. Government
- The Access Board (www.access-board.gov)
- Center for Medicaid and CHIP Services (CMCS): https://www.medicaid.gov/
- Centers for Medicare and Medicaid Services (https://www.cms.gov/)
- Centers for Disease Control and Prevention (https://www.cdc.gov/ncbddd/dd/default.htm)
- FirstGov - The official website for searching the US Government (https://www.usa.gov/)
- National Council on Disability (https://ncd.gov/)
- President's Committee on People with Intellectual Disabilities (https://acl.gov/programs/empowering-advocacy/presidents-committee-people)
- US Dept. of Health & Human Services (https://www.hhs.gov/)
- US Dept. of Justice - Americans with Disabilities Act (https://www.justice.gov/crt/disability-rights-section)